자료유형  

 학위논문

Control Number  

0016934893

International Standard Book Number  

9798379745707

Dewey Decimal Classification Number  

610.73

Main Entry-Personal Name  

Fernandes Moura B. Batista, Annanda.

Publication, Distribution, etc. (Imprint  

[S.l.] : University of Illinois at Chicago., 2023

Publication, Distribution, etc. (Imprint  

Ann Arbor : ProQuest Dissertations & Theses, 2023

Physical Description  

1 online resource(164 p.)

General Note  

Source: Dissertations Abstracts International, Volume: 84-12, Section: B.

General Note  

Advisor: Quinn, Lauretta.

Dissertation Note  

Thesis (Ph.D.)--University of Illinois at Chicago, 2023.

Restrictions on Access Note  

This item must not be sold to any third party vendors.

Summary, Etc.  

요약This dissertation aimed to explore the experiences and self-management support needs of youth living with ASD and T1DM from the perspective of their caregivers. Two papers from this dissertation address this purpose. The first paper, Autism Spectrum Disorder Factors' Impact on Empowerment of Type 1 Diabetes Daily Care in Youth with Both Conditions: A mixed method study, sought to (1) explore how autism-related factors impact T1DM management and examine the self-management support needs among family-empowered youth with T1DM and ASD, and (2) examine whether youth with higher levels of autism severity will demonstrate greater challenges in meeting their needs for T1DM care compared to youth with lower levels of autism severity and require more support from their families. The mixed method was picked for the quantitative portion and a descriptive exploratory approach for the qualitative portion. The study foundation is the qualitative approach, which paralleled the quantitative approach (QUALI + Quant). Qualitative and quantitative data were collected at the same time, merged after analysis, and results were intercepted. This means they were compared to find associations, convergent, and divergent and complementary information. The aim of the second paper, Spectrum (T1): Wellbeing, family experiences, healthcare providers, and network support used to mitigate the burden of living with both Type 1 Diabetes (T1DM) and Autism Spectrum Disorder (ASD), was to explore the experiences and self-management needs of youth living with ASD and T1DM from the perspective of their 24 family caregivers.This study has led to a greater understanding of the unique aspects of the self-management support needs of T1DM in youth with ASD; how these needs are affected by the levels of autism severity and factors such as individual, family, network, healthcare providers, and health policies. The first paper determined the impact of ASD on T1DM management and how families empower youth with autism in performing T1DM self-care activities. Also, the results showed that youth with level 3 of autism severity, which individuals have more restrictive behaviors that affect their independence in everyday activities, and they may be highly sensitive to sensory input, have more challenges in handling T1DM care. The second paper reported the self-management needs of T1DM related to parent's experiences with a child with T1DM and ASD; their well-being and hope for the future; longitudinal healthcare team care, insurance coverage, technology aides, and network support to the family and the youth with T1DM and ASD. This exploration helped to identify where more investigation is needed to explore diabetes self-management needs and challenges of parents and youth with T1DM and autism in sharing diabetes care responsibilities; educating the healthcare providers; and designing interventions to help parents share diabetes care according to self-efficacy, autonomy, and level of autism severity of the youth. Using objective measures, this dissertation has added to the breadth of knowledge about self-management support needs related to different ASD severity levels. This study provided a better understanding of the self-management support needs and optimal ways to deliver education, behavioral interventions, and technology-based interventions to improve T1DM self-care, T1DM control, and quality of life.

Subject Added Entry-Topical Term  

Nursing.

Subject Added Entry-Topical Term  

Public health.

Subject Added Entry-Topical Term  

Health care management.

Index Term-Uncontrolled  

Autism

Index Term-Uncontrolled  

Autism spectrum disorders

Index Term-Uncontrolled  

Diabetes

Index Term-Uncontrolled  

Type 1 diabetes

Index Term-Uncontrolled  

Self-management support needs

Index Term-Uncontrolled  

Self-care

Index Term-Uncontrolled  

Caregivers

Index Term-Uncontrolled  

Youth

Index Term-Uncontrolled  

Parents

Index Term-Uncontrolled  

Healthcare providers

Added Entry-Corporate Name  

University of Illinois at Chicago Department of Biobehavioral Nursing Science

Host Item Entry  

Dissertations Abstracts International. 84-12B.

Host Item Entry  

Dissertation Abstract International

Electronic Location and Access  

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Control Number  

joongbu:643170