자료유형  

 학위논문

Control Number  

0016933775

International Standard Book Number  

9798379602376

Dewey Decimal Classification Number  

610.73

Main Entry-Personal Name  

O'Brien, Julia Ann.

Publication, Distribution, etc. (Imprint  

[S.l.] : Case Western Reserve University., 2021

Publication, Distribution, etc. (Imprint  

Ann Arbor : ProQuest Dissertations & Theses, 2021

Physical Description  

1 online resource(162 p.)

General Note  

Source: Dissertations Abstracts International, Volume: 84-12, Section: B.

Dissertation Note  

Thesis (Ph.D.)--Case Western Reserve University, 2021.

Restrictions on Access Note  

This item must not be sold to any third party vendors.

Summary, Etc.  

요약Sickle cell disease (SCD) is an autosomal recessive disorder that affects approximately 100,000 Americans. Symptoms begin during infancy and progress throughout an individual, often shortened, lifespan. Self-care may optimize symptom management and delay chronic complications; self-efficacy is also linked to better health outcomes in many chronic disease populations, and there is emerging evidence that self-efficacy has a positive impact on health for patients living with SCD. However, little is known about potential psychosocial predictors of self-care actions and self-efficacy in adults living with SCD. Further study is needed to explore how the relationship between causal factors, including perceived stigma and health literacy, and health outcomes, such as pain interference and health related quality of life (HRQOL), is mediated by self-efficacy and self-care actions. The purpose of this study was to develop a model examining the relationships among patient factors, self-care management resources, and health outcomes in patients with SCD. Individual and family self-management theory and the theory of self-care management for sickle cell disease were used to frame the study. This study was a descriptive, cross-sectional study including a convenience sample of 60 adults diagnosed with SCD. Analysis included Pearson product-moment correlations and linear regression to address the study questions. Perceived stigma had significant relationships with self-efficacy (r = -.322, p .01), pain interference (r = .430, p .01), physical HRQOL (r = -.505, p .01), and mental HRQOL (r = -.382, p .01), and self-efficacy had significant relationships with physical HRQOL (r = .449, p .01) and pain interference (r = -.353, p .01). Linear regression supported mediation of the relationship between perceived stigma and physical HRQOL by self-efficacy, even when depressive symptoms were accounted for. This study furthered SCD knowledge by exploring both stigma and health literacy and their relationships to self-efficacy, selfcare, and health outcomes in patients with SCD. Examining a more extended model in patients with SCD created the foundation for future intervention studies that could improve self-efficacy and teach coping behaviors to reduce the impact of perceived stigma as well as decrease stigmatizing behaviors from health care providers.

Subject Added Entry-Topical Term  

Nursing.

Subject Added Entry-Topical Term  

Health care management.

Index Term-Uncontrolled  

Sickle cell disease

Index Term-Uncontrolled  

Self-care

Index Term-Uncontrolled  

Self-efficacy

Index Term-Uncontrolled  

Health-related quality of life

Index Term-Uncontrolled  

Pain interference

Index Term-Uncontrolled  

Stigma

Added Entry-Corporate Name  

Case Western Reserve University Nursing

Host Item Entry  

Dissertations Abstracts International. 84-12B.

Host Item Entry  

Dissertation Abstract International

Electronic Location and Access  

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Control Number  

joongbu:641305