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Quality of Life Among Patients with Celiac Disease: Assessment and Treatment in an Understudied Population- [electronic resource]
Quality of Life Among Patients with Celiac Disease: Assessment and Treatment in an Understudied Population- [electronic resource]
상세정보
- 자료유형
- 학위논문
- Control Number
- 0016931116
- International Standard Book Number
- 9798380367233
- Dewey Decimal Classification Number
- 157
- Main Entry-Personal Name
- Dochat, Cara.
- Publication, Distribution, etc. (Imprint
- [S.l.] : University of California, San Diego., 2023
- Publication, Distribution, etc. (Imprint
- Ann Arbor : ProQuest Dissertations & Theses, 2023
- Physical Description
- 1 online resource(195 p.)
- General Note
- Source: Dissertations Abstracts International, Volume: 85-03, Section: B.
- General Note
- Advisor: Afari, Niloofar.
- Dissertation Note
- Thesis (Ph.D.)--University of California, San Diego, 2023.
- Restrictions on Access Note
- This item must not be sold to any third party vendors.
- Summary, Etc.
- 요약Celiac disease is a chronic illness in which quality of life (QOL) is compromised and psychiatric illness is commonly co-occurring. The only available treatment for celiac disease is to consume a gluten-free diet indefinitely, which is burdensome and costly. Further, adults with celiac disease present with a variety of gastrointestinal and extraintestinal symptoms that can persist after diagnosis and may relate differently to gluten-free diet adherence, psychiatric wellbeing, and QOL. Despite a need for behavioral intervention to address these challenges, adults with celiac disease are understudied. This three-paper dissertation addressed gaps in the literature by (1) examining the factor structure and psychometric properties (internal reliability, convergent validity, known groups validity, incremental concurrent validity) of Celiac Disease Quality of Life Survey (CD-QOL) scores among U.S. adults with celiac disease; (2) examining patterns of persisting physical symptoms and their respective relationships to gluten-free diet adherence, psychiatric symptoms, and QOL using latent profile analysis; and (3) systematically reviewing the design of single-session Acceptance and Commitment Therapy (ACT) interventions for chronic illness populations and meta-analyzing QOL and functioning outcomes to inform future behavioral intervention development for celiac disease. Studies 1 and 2 used U.S. adult participant data from the iCureCeliac® patient-powered research network. Study 1 (N=453) results supported use of the 20-item English CD-QOL as a measure of celiac disease-specific QOL with a total score and four subscale scores (limitations, dysphoria/stigma, health concerns, and inadequate treatment). Study 2 (N=523) identified four unique physical symptom profiles characterized by variations in gastrointestinal and extraintestinal symptoms and subjective ratings of health. Subgroups associated with these profiles also differed regarding anxiety and depression symptoms, limitations due to physical and emotional health, social functioning, and fatigue/sleep, but not gluten-free adherence or celiac-disease specific QOL. Study 3 found support for the acceptability, feasibility, and preliminary efficacy of single-session ACT for improving QOL and psychiatric symptoms among chronic illness populations. Findings suggest that healthcare providers should screen for psychiatric symptoms and QOL deficits among adult celiac disease patients regardless of symptom burden, and development of brief ACT for celiac disease is warranted. Findings must be replicated in culturally diverse samples.
- Subject Added Entry-Topical Term
- Clinical psychology.
- Subject Added Entry-Topical Term
- Mental health.
- Subject Added Entry-Topical Term
- Behavioral psychology.
- Subject Added Entry-Topical Term
- Epidemiology.
- Index Term-Uncontrolled
- Celiac disease
- Index Term-Uncontrolled
- Treatment
- Index Term-Uncontrolled
- Psychiatric illness
- Index Term-Uncontrolled
- Behavioral intervention
- Index Term-Uncontrolled
- Emotional health
- Added Entry-Corporate Name
- University of California, San Diego Clinical Psychology (Joint Doctoral with SDSU)
- Host Item Entry
- Dissertations Abstracts International. 85-03B.
- Host Item Entry
- Dissertation Abstract International
- Electronic Location and Access
- 로그인을 한후 보실 수 있는 자료입니다.
- Control Number
- joongbu:639889
MARC
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■020 ▼a9798380367233
■035 ▼a(MiAaPQ)AAI29212030
■040 ▼aMiAaPQ▼cMiAaPQ
■0820 ▼a157
■1001 ▼aDochat, Cara.
■24510▼aQuality of Life Among Patients with Celiac Disease: Assessment and Treatment in an Understudied Population▼h[electronic resource]
■260 ▼a[S.l.]▼bUniversity of California, San Diego. ▼c2023
■260 1▼aAnn Arbor▼bProQuest Dissertations & Theses▼c2023
■300 ▼a1 online resource(195 p.)
■500 ▼aSource: Dissertations Abstracts International, Volume: 85-03, Section: B.
■500 ▼aAdvisor: Afari, Niloofar.
■5021 ▼aThesis (Ph.D.)--University of California, San Diego, 2023.
■506 ▼aThis item must not be sold to any third party vendors.
■520 ▼aCeliac disease is a chronic illness in which quality of life (QOL) is compromised and psychiatric illness is commonly co-occurring. The only available treatment for celiac disease is to consume a gluten-free diet indefinitely, which is burdensome and costly. Further, adults with celiac disease present with a variety of gastrointestinal and extraintestinal symptoms that can persist after diagnosis and may relate differently to gluten-free diet adherence, psychiatric wellbeing, and QOL. Despite a need for behavioral intervention to address these challenges, adults with celiac disease are understudied. This three-paper dissertation addressed gaps in the literature by (1) examining the factor structure and psychometric properties (internal reliability, convergent validity, known groups validity, incremental concurrent validity) of Celiac Disease Quality of Life Survey (CD-QOL) scores among U.S. adults with celiac disease; (2) examining patterns of persisting physical symptoms and their respective relationships to gluten-free diet adherence, psychiatric symptoms, and QOL using latent profile analysis; and (3) systematically reviewing the design of single-session Acceptance and Commitment Therapy (ACT) interventions for chronic illness populations and meta-analyzing QOL and functioning outcomes to inform future behavioral intervention development for celiac disease. Studies 1 and 2 used U.S. adult participant data from the iCureCeliac® patient-powered research network. Study 1 (N=453) results supported use of the 20-item English CD-QOL as a measure of celiac disease-specific QOL with a total score and four subscale scores (limitations, dysphoria/stigma, health concerns, and inadequate treatment). Study 2 (N=523) identified four unique physical symptom profiles characterized by variations in gastrointestinal and extraintestinal symptoms and subjective ratings of health. Subgroups associated with these profiles also differed regarding anxiety and depression symptoms, limitations due to physical and emotional health, social functioning, and fatigue/sleep, but not gluten-free adherence or celiac-disease specific QOL. Study 3 found support for the acceptability, feasibility, and preliminary efficacy of single-session ACT for improving QOL and psychiatric symptoms among chronic illness populations. Findings suggest that healthcare providers should screen for psychiatric symptoms and QOL deficits among adult celiac disease patients regardless of symptom burden, and development of brief ACT for celiac disease is warranted. Findings must be replicated in culturally diverse samples.
■590 ▼aSchool code: 0033.
■650 4▼aClinical psychology.
■650 4▼aMental health.
■650 4▼aBehavioral psychology.
■650 4▼aEpidemiology.
■653 ▼aCeliac disease
■653 ▼aTreatment
■653 ▼aPsychiatric illness
■653 ▼aBehavioral intervention
■653 ▼aEmotional health
■690 ▼a0622
■690 ▼a0347
■690 ▼a0384
■690 ▼a0766
■71020▼aUniversity of California, San Diego▼bClinical Psychology (Joint Doctoral with SDSU).
■7730 ▼tDissertations Abstracts International▼g85-03B.
■773 ▼tDissertation Abstract International
■790 ▼a0033
■791 ▼aPh.D.
■792 ▼a2023
■793 ▼aEnglish
■85640▼uhttp://www.riss.kr/pdu/ddodLink.do?id=T16931116▼nKERIS▼z이 자료의 원문은 한국교육학술정보원에서 제공합니다.
■980 ▼a202402▼f2024
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